Tuesday, September 9, 2008

for the families of a sn child

I just bought a book called, "Angel Unaware: A Touching Story of Love and Loss".

In the 1950s, doctors often advised parents of disabled babies to put them away in institutions or homes. But when entertainers Roy Rogers and Dale Evans Rogers discovered their new baby, Robin, had Down Syndrome, they were determined to take her home and give her their love.

It wasn't easy. Through countless surgeries and sleepless nights, the Rogers found themselves exhausted and worried until they began to notice a change in their lives. Somehow the unexplainable and unexpected was happening Robin was helping Roy and Dale draw closer to God and to each other. Robins brief life also persuaded them to do all they could to help others in similar circumstances.

Told from Robins point of view in heaven, Angel Unaware is a touching story that has inspired millions of readers around the world. Whether you are a parent of a special needs child or have experienced the loss of a loved one, Robin's story will bring you the peace and understanding you need in difficult times.

(I actually saw Roy Rogers when I was a child. He came to my grade school in Phoenix, Arizona for our "Western Days". He was going to do a benefit Rodeo for SN kids)

God Chooses Mom for Disabled Child
Written by Erma Bombeck Published in the Today Newspaper Sept. 4th, 1993

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children.

Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments forpropagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.
"Armstrong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudledge, Carrie; twins; patron saint.... give her Gerard. He's used to profanity.
" Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."
"I watched her today. She has that feeling of self and independence. She'll have to teach the child to live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you."
God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness." The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, there is a woman I will bless with a child less then perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a spoken word. She will never consider a step ordinary. When her child says "Momma" for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations." "I will permit her to see clearly the things I see---ignorance, cruelty, prejudice--- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her patron saint?" asks the angel, his pen poised in midair.
God smiles. "A mirror will suffice."